;)
Wednesday, February 29, 2012
Wednesday, February 22, 2012
On the mend
Little M is getting better. The best part of him getting bigger and growing up is our trips to baby jail have been getting shorter. Less than 24 hours and we were discharged. Of course the fact that we have done home oxygen and monitoring before helped. See?! The docs at baby jail get it! Why couldn't the "doctor" at the clinic understand my plea. Let us do O2, monitoring and A.lbuterol at home! But nooooo. We had to go to baby jail, in an ambulance no less, only to be told he has Rhinovirus again. The common cold is going to be the death of me I tell ya!
Anyway, all that matters is that my little guy is getting better. He had a follow up with his pedi, Dr. J. I still love her! She agreed with me about everything and has helped set up an action plan so we never have to deal with unnecesary trips to the hospital again. She also explained that other medical professionals see the DMD diagnosis on M's chart and freak out a little. Doesn't make it better or right, but helps me understand a bit I guess.
Oh and the liver enzymes..still elevated. More than last time in fact. Get to follow up with GI again. Still praying it's not serious. Still terrified of getting the answer. You know, if you don't want to know don't ask. Only I didn't ask and I still get to find out.
In the mean time, here is my little trooper in the ambulance and in his hospital gown. The whole ride to baby jail he was waving to the other cars and blowing kisses (well when he wasn't pulling off the oxygen mask or playing with the pulse/ox monitor). The EMT didn't know why I couldn't drive him myself. Me either sir. Me either!
Anyway, all that matters is that my little guy is getting better. He had a follow up with his pedi, Dr. J. I still love her! She agreed with me about everything and has helped set up an action plan so we never have to deal with unnecesary trips to the hospital again. She also explained that other medical professionals see the DMD diagnosis on M's chart and freak out a little. Doesn't make it better or right, but helps me understand a bit I guess.
Oh and the liver enzymes..still elevated. More than last time in fact. Get to follow up with GI again. Still praying it's not serious. Still terrified of getting the answer. You know, if you don't want to know don't ask. Only I didn't ask and I still get to find out.
In the mean time, here is my little trooper in the ambulance and in his hospital gown. The whole ride to baby jail he was waving to the other cars and blowing kisses (well when he wasn't pulling off the oxygen mask or playing with the pulse/ox monitor). The EMT didn't know why I couldn't drive him myself. Me either sir. Me either!
WAIT!!!! There's more I forgot!!! First of all, we were admitted on the one year anniversary of the day we finalized M's adoption. Sad that we couldn't celebrate. Next year we'll do better. But the biggest news?? We have a WALKER!!!!! While M and I waited to be discharged, he decided it was a perfect time to let go of the wall and take off. He looks like a little Frankenst.ein and is so proud of himself. I screamed I was so excited. Now it's a game for him and I'm more than happy to play along. Love my boy so much!!!
Saturday, February 18, 2012
Sick again
Little M is sick again. So am I for that matter and Mr. Temmie was last week. It's a cold. But poor Little M has such reactive lungs that any cold usually lands us in baby jail, a.k.a the children's hospital. So here I sit watching the saturation monitor praying he keeps his oxygen level above 90% using as little help as possible. (He's currently at 94% on 1/2 a liter of oxygen)
Sadly though this is the calm after our storm. Getting to this point today/yesterday was terrible. When i noticed Little M having issues it was after 5:00 on a Friday. So i took him to the after hours place associated with our pedi's office. We will never go there again. The staff, including the doctor was rude and condescending. I will be writing a letter to the medical board or whomever I have to. I'm not an idiot when it comes to my child and I won't tolerate being treated like one. And that's all I have to say about that.
I'm also at the point of begging God to not give my baby any more crosses to bare. Enough already!! Now the resident assigned to us is hung up on his elevated liver enzymes from 2010. We followed up with a GI specialist then and we were cleared. Now they want to retest his level and I'm TERRIFIED they'lll find something wrong. Send any prayers you can that his labs come back nornal. Lord please let them be normal!
Alright that's all for now. It's late and the nurse will be in to check vitals soon. Best to get some sleep if/when I can. And sorry if there are a ton of spelling errors. Typing this out on my noo.k.
Sadly though this is the calm after our storm. Getting to this point today/yesterday was terrible. When i noticed Little M having issues it was after 5:00 on a Friday. So i took him to the after hours place associated with our pedi's office. We will never go there again. The staff, including the doctor was rude and condescending. I will be writing a letter to the medical board or whomever I have to. I'm not an idiot when it comes to my child and I won't tolerate being treated like one. And that's all I have to say about that.
I'm also at the point of begging God to not give my baby any more crosses to bare. Enough already!! Now the resident assigned to us is hung up on his elevated liver enzymes from 2010. We followed up with a GI specialist then and we were cleared. Now they want to retest his level and I'm TERRIFIED they'lll find something wrong. Send any prayers you can that his labs come back nornal. Lord please let them be normal!
Alright that's all for now. It's late and the nurse will be in to check vitals soon. Best to get some sleep if/when I can. And sorry if there are a ton of spelling errors. Typing this out on my noo.k.
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